Discussion about this post

User's avatar
Katie Marquette's avatar

This is SO IMPORTANT. thank you for writing it.

Went right along with this disturbing story from the free press this week about a woman who struggled to get diagnosed with endometriosis --

https://open.substack.com/pub/bariweiss/p/i-wasnt-hysterical-i-was-sick?utm_source=share&utm_medium=android&r=e7zgp

Expand full comment
Ann's avatar

"But surgeons are encouraged to burn the cells rather than cut them out because it’s a simpler procedure—and they can only charge insurers for the cost of ablation. If patients want excision, they almost always have to go out of network. “The unfortunate reality is that not enough patients are offered surgery who would benefit from surgery,” Dr. Melissa McHale, a Maryland-based gynecologic surgeon specializing in endometriosis excision, said. She added that there are not enough “skilled and willing surgeons” to perform the procedure."

The dynamic is the same in some areas of cancer care, for both men and women. If an individual's physician can't provide and has a good faith belief that a type of treatment isn't an improvement over what they can offer (and private insurance won't cover it anyway), they may not tell the patient that it's an option and may even downplay its benefits or exaggerate safety concerns if asked about it (based on their good faith, head in the sand beliefs). It's tragic that people have to figure out treatment options themselves via social media. I think the underlying problem could be as much about money and inter-physician and hospital politics, as gender bias.

Expand full comment
20 more comments...

No posts